Parents of medically complex children say the changes made by the Indiana Family and Social Services Administration following the 2023 Medicaid forecasting error left families without critical services.

For over a year, Indiana has had a waitlist for home- and community-based services through Medicaid waivers. The Indiana Family and Social Services Administration launched a new online resource for people on the waitlists.

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The Family and Social Services Administration made changes to its proposal to rein in Medicaid spending on a common behavioral treatment. The agency is keeping the lifetime limit on Applied Behavioral Analysis, or ABA, therapy but is introducing coverage tiers based on need.

The Family and Social Services Administration is giving people 180 days to complete a service plan and several assessments to start receiving services — after they are invited off of the waiver waitlists.

More than 10,000 Hoosiers are waiting for home- and community-based services through Medicaid waivers, including those waiting to go into assisted living facilities. A House committee approved a bill that aims to eliminate as many barriers to assisted living for older Hoosiers as possible.

Last year, families of medically complex children found themselves at the center of the Family and Social Services Administration’s response to the 2023 Medicaid forecasting error. A House committee approved legislation that could provide more transparency as the agency makes changes to an important Medicaid waiver.

Gerald Williams was one of thousands of Hoosiers placed on a waitlist for services. This isn’t the first time Indiana has implemented a waitlist for these services. In fact, advocates warn this could be the return to a decades-long wait for services and that wait is already having a human cost.

Thousands of Hoosiers continue to wait for home- and community-based services through Medicaid. One advocate said families should keep consistent contact with the state while they wait.

The Family and Social Services Administration said in February it was not aware of how much money certain caregivers were paid. The agency announced it will implement a minimum “pass-through” rate prompted by legislation signed into law this year.