Articles tagged as: sickle cell disease
June 23, 2022
When children with sickle cell grow up, they face a system not designed for them
Sickle cell disease was long considered a pediatric illness because it took so many children's lives. Health interventions have made it possible for people with sickle cell in the U.S. to live well into adulthood. But the transition out of pediatric care comes with many challenges.
Read MoreJune 16, 2022
Getting fertility care is complex. It can be harder if you have sickle cell disease
Sickle cell disease can damage patients bodies in ways that affect their ability to have children, and some treatments may also affect fertility. But many in the resource-strapped sickle cell community cannot access fertility treatments.
Read MoreJune 14, 2022
Health officials say more African American blood donors are needed
Health officials say there is an urgent need for blood donors to help those living with sickle cell disease.
Read MoreJune 7, 2022
Sickle cell patients face a double whammy: Systemic racism and a crippling disease
Sickle cell disease affects mostly Black patients. How the system treats it shows the deep roots of systemic racism.
Read MoreApril 27, 2022
Sickle cell can be passed on to kids – but many don’t know if they carry the gene
Sickle cell disease is a serious genetic condition that can cause severe pain, strokes and organ failure, affecting mainly people of African descent. Many adults don't know if they are carrying the sickle cell trait, which can be passed on to children, so medical providers want to raise awareness about the importance of genetic testing.
Read MoreJune 28, 2021
Grant Money To Study Sickle Cell Anemia
A facility that treats people affected by the blood-based disorder, sickle cell anemia -- also called sickle cell disease -- received a $50,000 grant from biotech company Global Blood Therapeutics (GBT). The Indiana Hemophilia and Thrombosis Center seeks to learn more about treatments for the disease.
Read MoreOctober 13, 2020
Local Medical Center Gets CDC Grant To Collect Sickle Cell Data
The Indiana Hemophilia and Thrombosis Center in Indianapolis has received a 3-year grant to collect data aimed at helping Hoosiers living with sickle cell anemia.
Read MoreJune 15, 2018
A Mother's 15 Year Struggle To Get Life Saving Care For Her Daughter
For years, Tamitria Jernigan took Tashea to Illinois for sickle cell treatment. A lot of families in Lake County do this because the care is better.
Read MoreJune 6, 2018
Indiana Hematologist Hits The Road To Prevent Children From Having Strokes
Doctor Emily Meier usually practices hematology at the Indiana Hemophilia and Thrombosis Center in Indianapolis. But four times a year Meier and her team drive two hours north to Lake County and host a clinic for children diagnosed with sickle cell disease.
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