Articles tagged as: sickle cell disease
February 21, 2024
The story of Jade and Lena, friends who refused to let sickle cell win
Together, they’ve faced chronic pain and medical racism — and found their voices.
Read MoreDecember 11, 2023
Sickle cell experts say a cure without care jeopardizes the freedom promised by new gene therapies
The FDA just approved new gene therapies for sickle cell disease. Now, ensuring access to the treatment is top of mind for patients and doctors.
Read MoreDecember 20, 2022
If the antibiotics shortage worsens, children with sickle cell risk preventable deaths
Children with sickle cell disease rely on daily doses of penicillin to prevent life-threatening infections. But lately, some are finding it hard to fill their prescriptions.
Read MoreAugust 29, 2022
Helping sickle cell patients starts with collecting better data
A lack of data regarding sickle cell disease in the U.S. stunts efforts to improve outcomes for patients. The federally funded Sickle Cell Data Collection Program aims to chip away at these data gaps.
Read MoreJune 23, 2022
When children with sickle cell grow up, they face a system not designed for them
Sickle cell disease was long considered a pediatric illness because it took so many children's lives. Health interventions have made it possible for people with sickle cell in the U.S. to live well into adulthood. But the transition out of pediatric care comes with many challenges.
Read MoreJune 16, 2022
Getting fertility care is complex. It can be harder if you have sickle cell disease
Sickle cell disease can damage patients bodies in ways that affect their ability to have children, and some treatments may also affect fertility. But many in the resource-strapped sickle cell community cannot access fertility treatments.
Read MoreJune 14, 2022
Health officials say more African American blood donors are needed
Health officials say there is an urgent need for blood donors to help those living with sickle cell disease.
Read MoreJune 7, 2022
Sickle cell patients face a double whammy: Systemic racism and a crippling disease
Sickle cell disease affects mostly Black patients. How the system treats it shows the deep roots of systemic racism.
Read MoreApril 27, 2022
Sickle cell can be passed on to kids – but many don’t know if they carry the gene
Sickle cell disease is a serious genetic condition that can cause severe pain, strokes and organ failure, affecting mainly people of African descent. Many adults don't know if they are carrying the sickle cell trait, which can be passed on to children, so medical providers want to raise awareness about the importance of genetic testing.
Read MoreJuly 29, 2021
Some Black Patients Wait For Days To Get Crucial Blood Transfusions
Everyday, patients with chronic illnesses need blood transfusions. But what if the blood bank doesn't have a match?
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